Well, it has been a while since we posted a detailed update… so here it goes! Hold on, because these last few weeks have been CrAzY.
On September 30th, Madi was extubated for her first time since her repair surgery on September 11th. She made it until October 3rd and had to be re-intubated. We strongly feel that when she was extubated this time that she was having withdrawals from some of her medication being weaned and it was all just too much for her. If she was awake she was crying, and if she was crying she was dropping her oxygen and heart rate, so it was a very long few days and we were happy to see her get some rest from having to struggle so hard.