Things have been going well.   Madi has been laying out relaxing as best she can.  She is totally off her IV meds which is great.  They have also taken her off both her motility medicines.  No big changes for now.  The doctors will be having a planning meeting on the 29th to talk about Madi’s care and upcoming surgery.  Please pray that God will give them wisdom on the right method to use and how to best take care of her.  Keep praying for our sweet girl!

Today has been good, actually this whole week has been good. Madi has been tolerating her feeds well and peeing and pooping 🙂 which we are excited about! Good news is they are weening down her IV drips and she will only be on scheduled doses of medicine (that’s two less medicines) given through her J-tube. They have also taken her off of one of her motility medicines (another medicine gone) and if she does well without them they will ween the other one next week. All of this is in preparation for her “big” surgery which is still slated for September 11.

The most exciting thing – Madi smiled at her mom for the first time today!  What a blessing!

Madi has continued to have a great couple of days.   She has been tolerating her feeds well and they have now added protein to her feeds to help her grow stronger and heal even quicker.  No real changes in her care for now they want her to heal and grow.  Keep praying for her.  I attached below what I believe to be the best photo taken yet… 😉 You can also click on the photo gallery link at the top as I will add pictures from time to time.

Madi has had a great couple of days and nights.  We are so thankful she has been able to rest and feed.  They have been fortifying her feeds with additional calories to help her grow bigger.  She has been pooping and peeing good which is a wonderful blessing.   The big news is we have set a tentative date for the repair surgery and it looks like it will be September 11.  It’s this date for many reasons.  Pray that nothing happens that would change this date.  (Things with Madi). Also today please pray for the Williams family.  They had to make the decision last night to stop the machines and their 2 month old “Colin” went to be with Jesus.   Megan and I have cried for many families up here and we pray that God will allow us to be an encouragement to them.  You all pray for them too.  We love you all.

Today has been a good day.  We are so thankful for the good days. Madi seems to be pooping on her own which is great.  Please continue to pray for Madi but when you do remember the other families that are here with us.  We met a precious family two weeks ago whose son had been in the NICU for 8 months.   “Jud” was his name.  We found out today that Jud passed away unexpectedly last Sunday.  Another family said goodbye to their little boy “Cooper” that was just 4 weeks old and had a condition (I Don’t know what it was) but that same family lost their 3 year old just 4 months ago to the same condition.   Mine and Megan’s hearts go out to them.  We hurt for them and for what will be their new reality.   But at the same time we are thankful for a precious Savior whose love is even more real in the incredibly difficult times.  Pray for these families tonight as you pray for our sweet Madi.  God is good even in the midnight hour.  Love y’all.

She has continued to have a good couple of days.   No changes really.   Feeds are still going good and she has started pooping again.  🙂  They are going to add calories to her breast milk to help give her more nutrition and help fatten her up.  Which is good.

Madi Update – Madi has had an uneventful day. Although they did take her to the OR to replace her small POPE tube with a medium POPE tube.  But everything went well and it only took about 15 minutes.   We are thankful for the uneventful days.